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Community => FAQ: Using H-W Forum => See: MEMORIALS => Topic started by: Threewolves on March 03, 2023, 11:13:21 PM
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Bottom line up front. My son (46yr) Kenny's oncologist wants him to stop working now. If he does that, at certain point he would not have job and would not have heath care. My question is what do you do? How should this be managed? This is going to come up in the near future anyway.
So, today 3Mar after a couple weeks of testing the pathology of a biopsy of mass in his lymph node shows clear cell cancer which is inoperable and untreatable. They say he has 1 to 3 years. He had Hodgkins cancer when he was 11 treated with radiation, the same cancer when he was 13 treated with chemo. He was good untill two years ago he had quad bypass open heart surgery. This new issue started up about 6 weeks ago starting with a sore neck.
He is worried about his wife and son(15).
I am soliciting prayers!
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Prayers sent!!
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They are going to biopsy another mass in or on his lung to determine if it is the same or other type of cancer this week.
Starting treatments this coming Friday. Which seems weird if it is un treatable, it said if it is beneficial? I' check the term again and get back on.
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Immunotherapy as long as it is beneficial. When I looked up clear cell cancer it said you could live up to 5 years.
But he his having some issues breathing and coughing now, sounds horrible, but still going into work because he wanted to manage days for when he really need to take off. Before this bad news he thought the worse case would be doing chemo he was already talking about having an access port put in like when he was going through treatment when he was a kid.
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Prayers being sent Brother :tup:
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This truly sucks and prayers sent
Cancer sucks, period!
My spouse works at SCCA/Fred Hutch and I hear these stories daily
All tragic with the occasional bright spot
Where is he getting treatment?
There are good ones and not so good ones
Even docs within any clinic
May be able to help
PMs will be responded to
And more prayers to him, you and your family
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This truly sucks and prayers sent
Cancer sucks, period!
My spouse works at SCCA/Fred Hutch and I hear these stories daily
All tragic with the occasional bright spot
Where is he getting treatment?
There are good ones and not so good ones
Even docs within any clinic
May be able to help
PMs will be responded to
And more prayers to him, you and your family
SCCA is fantastic!!!
My wife has been through two battles and SCCA/UW have saved her! :twocents:
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I will find out what the local place is. I'm looking at MD Anderson in TX, my sister checking a place in AZ. Heck we are even looking at dog de wormer. Why not, if you are going to tell me it's untreatable.
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So if he can't work isn't the some kind of social security that you can be on and the be eligible fot Medicare ?
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Prayers to your son and his family. That’s too darn young!
Seems like he should be able to qualify for SS Disability pay, I’d start there.
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So if he can't work isn't the some kind of social security that you can be on and the be eligible fot Medicare ?
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Yes. Apply for social security disability. After two years on disability people are automatically on Medicare, I don’t know if he can get it sooner than that. It’s a good question to ask when on the phone applying for disability.
I also went to SCCA, I think they changed their name to Fred Hutch Cancer Center recently, with very late stage cancer & they saved my life. A second opinion is always worthwhile. MD Anderson in Texas also has a very good reputation. If the place in Arizona your sister is checking is Cancer Centers of America , I’d encourage your family to tread carefully. They advertise fantastic success rates, but they do it by only selecting patients with the very best health insurance and cherry picking cases with the easiest to treat cancer.
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Wishing you and your family the best.
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That is a rough go. Sorry your family is going through this. Prayers sent.
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Y’all got my prayers!
If it were me I’d try autophagy if my weight was good enough, and I’d do NAC and Ivermectin while not fasting
If you haven’t heard of autophagy you’ve got some reading to do
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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6274804/
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Prayers sent.
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Prayers sent!
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Terrible situation for your son and family to be in. Praying for a miracle 🙏🏻
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My son went to SCCA when he was dealing with cancer several years ago. I know a few others that have been treated there. Nothing but rave reviews from all. Dr. Byrd was my sons Dr. incredible Dr. and person!
Lord, I pray to you to work a miracle for Kenney, I pray that you are able to cure him of this disease that is threatening to take his life. I pray for comfort, healing, and understanding as he goes through this.
I pray for skill and wisdom for his Doctors and medical providers. That they can use their knowledge and resources to battle this cancer and help Kenney beat it.
I pray for Kenneys family and all of those that know him and love him. That they will have peace, comfort, and understanding as they go through this with him. I pray that with their love, support, and prayers that they can help give him the strength and determination to get through this difficult battle.
I pray that Kenney is able to get any assistance he needs and deserves as he goes through this. Whether it be financial, spiritual, emotional or any other assistance. I pray that the doors are open and it is readily available to him.
Lord please bestow all of your mighty blessings on all of these people.
In Jesus name I pray.
Amen!
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Amen!
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My son went to SCCA when he was dealing with cancer several years ago. I know a few others that have been treated there. Nothing but rave reviews from all. Dr. Byrd was my sons Dr. incredible Dr. and person!
Lord, I pray to you to work a miracle for Kenney, I pray that you are able to cure him of this disease that is threatening to take his life. I pray for comfort, healing, and understanding as he goes through this.
I pray for skill and wisdom for his Doctors and medical providers. That they can use their knowledge and resources to battle this cancer and help Kenney beat it.
I pray for Kenneys family and all of those that know him and love him. That they will have peace, comfort, and understanding as they go through this with him. I pray that with their love, support, and prayers that they can help give him the strength and determination to get through this difficult battle.
I pray that Kenney is able to get any assistance he needs and deserves as he goes through this. Whether it be financial, spiritual, emotional or any other assistance. I pray that the doors are open and it is readily available to him.
Lord please bestow all of your mighty blessings on all of these people.
In Jesus name I pray.
Amen!
Amen!
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Amen!
Will add this to my daily prayer list. Also check out the Joe Tippens protocol if you're going to try fendbendazole
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I'm sorry to hear what your son and family are going through. Cancer sucks. My best wishes are for his miracle recovery. Were it me, I'd find a way to quit my job immediately and enjoy my life with my wife and child. Apple Care is free for the unemployed and has excellent coverage. When I lost my job in 2020 because of Covid, they started me on it immediately, that day. The specializing cancer treatment centers aren't usually covered completely or at all by insurance. He can find out with a couple of phone calls what the difference in coverage is between his current plan and Apple Care.
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Sending prayers.
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I was told 10 years ago that I had less than 6 months and to get my things in order. I had a Sarcoma in my leg the size of a large beer can. Biggest ever seen they said. I refused chemo cause 0 percent chance to live they said. I did take radiation after the operation. I prayed every day and still do. I will pray for you and your family. God bless.
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I was told 10 years ago that I had less than 6 months and to get my things in order. I had a Sarcoma in my leg the size of a large beer can. Biggest ever seen they said. I refused chemo cause 0 percent chance to live they said. I did take radiation after the operation. I prayed every day and still do. I will pray for you and your family. God bless.
That's amazing.To the OP best of wishes and hope your son proves the doctor's wrong.
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Prayers sent!
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My son went to SCCA when he was dealing with cancer several years ago. I know a few others that have been treated there. Nothing but rave reviews from all. Dr. Byrd was my sons Dr. incredible Dr. and person!
Lord, I pray to you to work a miracle for Kenney, I pray that you are able to cure him of this disease that is threatening to take his life. I pray for comfort, healing, and understanding as he goes through this.
I pray for skill and wisdom for his Doctors and medical providers. That they can use their knowledge and resources to battle this cancer and help Kenney beat it.
I pray for Kenneys family and all of those that know him and love him. That they will have peace, comfort, and understanding as they go through this with him. I pray that with their love, support, and prayers that they can help give him the strength and determination to get through this difficult battle.
I pray that Kenney is able to get any assistance he needs and deserves as he goes through this. Whether it be financial, spiritual, emotional or any other assistance. I pray that the doors are open and it is readily available to him.
Lord please bestow all of your mighty blessings on all of these people.
In Jesus name I pray.
Amen!
Beautiful....Amen
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Prayers sent.
Cancer sucks!
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Prayers for your boy and your family.
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I don't have any advice but I can and will pray. Best of luck!
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Lord bless all the folks who who have responded to my post. I want to thank everyone for their prayers, comments, and advice.
Also, want thank those that sent pm's. Someone sent message on ivermectin I can not seem to find. Please resend. Take care all.
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We did get hooked up with Fred Hutch
He did get on a drug trial for about a week, got deathly sick.
Could do not the immunotherapy at the time because he was so beat down by the trial drug. Just iv's to rehydrate him.
Eventually did do the first round of immunotherapy.
Got hurting so bad his wife took him in to ST. Pete at 0400, Oxygen level low, wanted to admit him and parked him in a hallway saying it could take up to 24 hours to get a room. Parked him next to some guy that was a raging Ahole with security across from him.
His wife call his care team a Fred Hutch, they said to bring him to UW Med. My daughter and I took him. They checked him out he had pneumonia in left lung, low oxygen level, torn mussel in his lower back from coughing. He was admitted sat to Friday. Now, has an oxygen machine in his house that he uses at night time
I took him up Monday the 8th May for his second round of immunotherapy. The mass in his lung has grown since a PET scan and the scan they took while he was at UW med. They say they usually do not see any change until after the third round of immunotherapy. Therapy is every three weeks
Life really sucks right now. He had plans to keep working some to manage his time off work. BUT, he has been beat down since the trial drug. He can hardly move without pain, barely eats, seems like it pains him to talk. He is pretty much a wreck, he has gone down hill pretty fast since my 03 march post. I really can find the words to describe the situation, but it is worse. He talked about if life is going to be like this, and things get worse he does not want them doing anything to prolong life. We talked some about DNR, my daughter mentioned some counseling for people who maybe terminal. Yesterday he said they are looking into Social Security Disability, he said Dad, I don't think I am going to be able to go back to work.
Hey folks we don't need any thing but prayers. Waiting for this third round of therapy in two week. Seems like he is giving up. My daughter asked him if he was afraid of dying, she said he said no. I asked him if he believed in GOD he said he does.
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My son went to SCCA when he was dealing with cancer several years ago. I know a few others that have been treated there. Nothing but rave reviews from all. Dr. Byrd was my sons Dr. incredible Dr. and person!
Lord, I pray to you to work a miracle for Kenney, I pray that you are able to cure him of this disease that is threatening to take his life. I pray for comfort, healing, and understanding as he goes through this.
I pray for skill and wisdom for his Doctors and medical providers. That they can use their knowledge and resources to battle this cancer and help Kenney beat it.
I pray for Kenneys family and all of those that know him and love him. That they will have peace, comfort, and understanding as they go through this with him. I pray that with their love, support, and prayers that they can help give him the strength and determination to get through this difficult battle.
I pray that Kenney is able to get any assistance he needs and deserves as he goes through this. Whether it be financial, spiritual, emotional or any other assistance. I pray that the doors are open and it is readily available to him.
Lord please bestow all of your mighty blessings on all of these people.
In Jesus name I pray.
Amen!
Amen.
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So sorry to hear this latest update. Prayers sent for your son and entire family.
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🙏🙏🙏 Peace, strength, and comfort to all involved
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Sorry to hear how things are going. Thank you for taking the time to share your families difficult journey. Prayers sent!
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So sorry to hear that.
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I could not figure out how to change the title to Update.
I just wanted to let you guys know my son Kenneth did not make it.
What was tried is related in my 12 May update. Things just didn't go his way. Hospice came in tuesday and said he only had days left. He passed away early this morning 2 June 2023. This is all I can write right now. God Bless
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So sorry for your loss. May God give you strength.
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Prayers and condolences to you and your family. Something no parent should ever have to go through
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So very sorry to hear this. My mom always said, “this to will pass”, it was her motto through all of her treatments and at the end. I hope that you and your family are surrounded by love and look back at the happy days because those are the ones that shine through when you miss them the most.
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I could not figure out how to change the title to Update in the original post .
I just wanted to let you guys know my son Kenneth did not make it.
What was tried is related in my 12 May update. Things just didn't go his way. Hospice came in tuesday and said he only had days left. He passed away early this morning 2 June 2023. This is all I can write right now. God Bless
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So sorry. May God grant you peace in this difficult time.
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So sorry to hear. I can not even imagine the thought of having to bury one of my children. I pray that God help you and your family during this difficult time. Though I did not know him, I pray that Kenneth rest in peace.
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I am so very sorry.....
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So sorry for your loss.
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Our hearts are heavy from your loss and will be keeping you and your family in our thoughts .
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I'm very sorry for your loss
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So sorry for your loss. RIP to your son. I can’t imagine the pain🙏🏻
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So sorry.
I will pray for you.
May he rest in peace.
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I am so sorry! I somehow missed this thread until now. I read through the whole thread, How heartwrenching! I feel tHere's no words that can comfort your family. Prayers are all I can give.
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I’m so sorry. Your family remains in my prayers.
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So sorry to hear.
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I am sorry for your loss.
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Very sorry for your loss. I can’t imagine.
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May he rest in peace, I will continue praying for him and your whole family.
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Very sorry to see that update. Best wishes for your family
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Horrible news. I'm so sorry for all of you.
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Very sad to hear of his passing and you and your family's loss.
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This was not the update I was hoping for. I am so truly sorry for your loss and I pray that the love of God surrounds you and your entire family during this time. I pray that the happy memories of Kenneth bring you comfort, and that knowing you'll see him again someday brings you peace. 🙏
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This was not the update I was hoping for. I am so truly sorry for your loss and I pray that the love of God surrounds you and your entire family during this time. I pray that the happy memories of Kenneth bring you comfort, and that knowing you'll see him again someday brings you peace. 🙏
My thoughts mirror this!
Praying for peace and healing for all of you!
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Our condolences from my wife and I. Any loss is always hard. Is there any assistance needed for the possible expenses? We know that they will trickle in and just doesn't help with the healing process. Don't understand Go fund me, etc but we can make a contribution if it will help.
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I am very sorry for your loss and the pain you and your family are experiencing.
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There are no words anyone can say that will ease your pain. It just plain sucks! Anger, frustration, and sadness are normal emotions, and though we as men feel we need to be strong for everyone else, please don't suppress them. Find a time and a way to grieve for yourself because if you don't they will come out...whether you want them to or not. Be comforted in the fact that Kenneth no longer feels pain and suffering, but at the end of the day it still just sucks. No father should have to outlive his child. We aren't wired for that kind of grief. If there's anything you need the Blanchards are on standby.
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I can't even imagine.
So sorry for your loss.....
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I just caught up on this thread.
I'm so sorry for your loss.
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I am so very sorry for your loss...
Gary
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There are no words anyone can say that will ease your pain. It just plain sucks! Anger, frustration, and sadness are normal emotions, and though we as men feel we need to be strong for everyone else, please don't suppress them. Find a time and a way to grieve for yourself because if you don't they will come out...whether you want them to or not. Be comforted in the fact that Kenneth no longer feels pain and suffering, but at the end of the day it still just sucks. No father should have to outlive his child. We aren't wired for that kind of grief. If there's anything you need the Blanchards are on standby.
:yeah: :yeah: :yeah:
So very sorry for your loss.
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I have no words that would help, may your son rest in peace and your family heal the best it can
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There are no words. I feel for you and your family.
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First time I've seen this thread, and I'm so sorry for you and your Family.
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I can't imagine your pain. Prayers for you and yours.
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Thoughts and prayers go out to you and your family. One can't imagine the pain that a parent feels when loosing a child, my heart goes out to you.
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Sorry for your loss.
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So sorry for your loss. May he rest in peace. Prayers for you and your loved ones.
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@Threewolves
I am crying right now just reading this for the first time.
Please take care of his wife and kids and prayers sent to all of you in this time of need.
Not trying to make this about me, but I 100% know what your family is going through.
Just lost my 51 year old beautiful wife to liver cancer a month ago today after 15 years of heart problems and more surgeries than I can count…all stemming from having Hodgkins as a kid.
I know how tough it is for me and our boys right now and we’ve known her time here was limited, for a while now….
This hits home too close and all I can offer besides our prayers is help.
I’m not on here all the time but I’m in a little better place than you all right now and please reach out if I can help with anything. I’ve also been navigating the what to do, SSI benefits insurance etc. If I can help your family in any way it would please me to pay back just a little of the kindness we’ve received recently!
-Thrall
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Super sad! i am very sorry for your loss. Your family will be in our prayers!
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So sorry for your loss, burying a child is not something anyone should ever have to suffer through. Prayers sent, may you find peace in knowing he is no longer in pain, God Bless!
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Very sorry for your loss, I can’t imagine.
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Sorry for your loss. Couldn’t even begin to imagine what you are going through.!!!
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God bless you and your family
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MODS, could this please be moved to Memorials, thank you.(https://uploads.tapatalk-cdn.com/20230813/3f9b671ea007f2ec1c89b18159d183d3.jpg)
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Still brings a :'( when I read this thread.
Hope as time goes by the good memories ease some of the pain...
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Somehow I missed the update. So sorry for your loss, thank you so much for letting us know.